Resources

GENERAL INFORMATION ABOUT EDS

EDNF.ORG
Visit EDNF.org to learn about Ehlers-Danlos syndrome (EDS), a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hypermobility, skin extensibility and tissue fragility.

EDSawareness.com
EDSawareness.com is a new online resource for the Ehlers-Danlos Syndrome community. We provide informative resources for individuals suffering with EDS and their caregiver networks.

Joint Hypermobility Handout by Dr. Pocinki
Dr. Alan Pocinki is an expert on EDS and the myriad ways it affects multiple body systems. He has put together a handout that summarizes the diagnostic criteria and symptoms of joint hypermobility syndromes. This is an excellent resource for educating yourself, your family, and your doctors. Download the PDF here.

Dysautonomia and POTS Resources

The Dysautonomia Information Network
Visit dinet.org to learn about POTS and dysautonomia. Dysautonomia means dysregulation of the autonomic nervous system. Dysregulation of the autonomic nervous system can produce the apparent malfunction of the organs it regulates. For this reason, dysautonomia patients often present with numerous, seemingly unrelated maladies.

Dysautonomia International
Dysautonomia International is a 501(c)(3) non-profit founded in 2012 by patients, caregivers, physicians and researchers dedicated to assisting people living with various forms of dysautonomia.

 

 

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